Quarantine fatigue is real. How are you coping with it? In this blog, I talk about some things that help and one thing we can't afford to do.
Category: MS Journey
Update in the midst of a pandemic
A brief update on my year with the added complication of a pandemic. We're all trying to figure this out with some success and some failures.
One year. . .
I spent today getting my 4th Ocrevus infusion of 2019 - two half doses plus two full doses. Just over a year ago, I had no idea what lay ahead after receiving the Multiple Sclerosis diagnosis on December 1. For those who are interested this will be a brief update. A year ago, I was … Continue reading One year. . .
The Best Medicine
Finding ways to laugh at myself is good medicine as is surrounding myself with others who laugh with me.
What! You, too?
When we find a point of connection with another, as C.S. Lewis describes, when we can say, "What! You, too?" Our shared experience binds us together and in that magical moment of connection, we find hope.
Navigating the Fire Swamp
Today is World MS Day and in honor of that I am going to give a quick update on my own journey with this disease. It has been 6 months since I was diagnosed and I've learned a lot. I still have ongoing symptoms - numbness in both feet and my left leg, weakness in … Continue reading Navigating the Fire Swamp
For the Love of Spoons
We are forever losing spoons in our house. Even after washing dishes, there will be fewer and fewer spoons in the silverware drawer. I used to blame my teenage children, who by the way, said they never took spoons to their rooms. Sometimes, after good room cleanings, the spoons would miraculously reappear. But most of … Continue reading For the Love of Spoons
Recently, I sat across from my neurologist in her office waiting to find out the results of several recent medical tests. The numbness in my leg and hands had not improved, blood tests, several MRIs and an EMG test had been ordered and this appointment would finally reveal the diagnosis, at least I cautiously hoped. … Continue reading Stronger